Dad, Mom, and baby Meghan

Dad, Mom, and baby Meghan

Tuesday, March 26, 2013

Happy 8th Birthday to Amanda!!


Miss Amanda had a not so great day. Her nose was runny, she was rubbing her face with snot and rubbing her eyes, the allergy index was pretty high!  Her mood was grumpy and well, today autism won.   Today she was pulling hair, shoving people over, scratching, crying, and raging. I just want to cry for her and with her.We plan on taking the little girls to The Croods later this week, maybe she will be happier and enjoy that.  I wish she could have had a joyous day today. (sniff)

 I was looking forward to her birthday, she has been making great strides in controlling her impulses, and we thought she would look forward to opening gifts and having a special cake. She did enjoy her cake! She did not care about gifts at all.

Happy Birthday to sweet Amanda! I hope our beloved  girl feels much better tomorrow.

Saturday, March 16, 2013

Out and about

We took Meghan, Amanda and Kara to Home Depot today, I know, we must be out of our minds, doing that on a Saturday. Meghan decided to walk alongside her dad, Kara sat in Dad's basket, I put Amanda in a second basket. We needed plants for spring and some fencing for the dogs. 

We started in the plant section, I can spend hours  there, I just love imagining new gardens, and after digging up 7 dead Tea Roses, I have a blank slate.  I was gathering everything I needed for my garden and my empty pots as fast as I could, the place was crowded, not really the best place for our girls, especially Amanda.

I got the flowers I wanted, Kara pulled all the flowers and large leaves off of one of them, she tried throwing a few on the ground. Amanda kicked off her shoe. OK, nothing really terrible there. Amanda was smiling, giggling, and relatively quiet for her. I was feeling relaxed and just happy to not be in pain today, stupid arthritis can really get me down sometimes.

I stopped to look at some red verbena, and a pretty older woman made the mistake of standing near Amanda who proceeded to grab the ladies tee and jerk it and the woman wearing it towards her. Tom removed Amanda's hand, and I apologized to the woman. She seemed totally OK with the interaction, even turning to smile at Amanda. I immediately thought; "She must have someone with special needs in her family". I moved us away from her anyway, for her protection. Once Amanda decides someone needs her attention, she rarely gives up...

We had to go from the garden section to the lumber, which just had to be all the way on the other side of the store. We worry about it, because Kara likes grabbing things off shelves as we walk by, thankfully they are usually unbreakable. Today the aisles were wide enough not to offer her any temptation. We got the usual stares from other shoppers, but most people were intent on their own shopping, and I was glad for that.

We found the temporary fencing for the back yard; we need to spread Diatomaceous earth to combat ticks, the dogs cannot be near the ground, as inhaling the powder could damage their lungs. Amanda and I decided Tom could figure out what kind of fencing to purchase and went back to the garden section. She was in a playful mood so I was goofing around with her, she was making eye contact, smiling, happy, and I wanted to enjoy it.  In her zeal she began to scream, LOUDLY, and of course everyone around us stopped and stared. I just smiled at them and we kept walking.  She did continually try to grab my shirt, but I simply remind her that she needed to use "nice hands" and she would move her hands back. She is getting so much better at listening and pulling back. 

We know the Kara and Amanda can be rowdy, loud, grabby, and are prone to making weird noises, we re-direct them all day for it, but even though we had a couple of 
incidents, I was proud of them today. 

You can tell Meghan is growing up, she calmly walked beside us, only stopping to sit at the patio furniture again, she does this at any store that sells it, telling us; "Look Mom, oh so pretty".  Honestly, a girl who adores lawn furniture? Our Meghan is quirky! Nothing would make her happier than a set added to the back yard. Unfortunately, Lola and Chloe, our "chew it to pieces" Labs would destroy anything but metal furniture, and a place that has 100+ degree summer days cannot have metal furniture, OUCH! Do Lab's ever stop chewing up everything? 

Sunday, March 3, 2013

I found the most beautifully done dolls today, they are made to resemble children with Down syndrome, and unlike some very unflattering depictions of previous doll makers, these dolls are simply  gorgeous!

www.dollsfordowns.org

I hope I can get one for each of my girls eventually, though I would love it if she chose different eye colors for some, our Meghan has very blue eyes, but brown hair (just like her big sister), that combination is always so hard to find.

Tuesday, February 26, 2013

Happily ever after?

Another adopted child died this week, a child from Russia. Anyone following international adoption knows that Russia stopped allowing Americans to adopt a few weeks ago.

Because this very tragic death,  Russians are posting articles about murderous American families stealing their children and hurting them, killing them. I am so upset about this hypocrisy. Imagine, these wounded orphans come to families with RAD and FAS and other developmental and cognitive delays, they are wounded children. Severely neglected, never held or loved, only having their basic needs being met, enough to keep them alive, but not really living. So many orphans die monthly in Russian institutions.                                                                                                                                                    

I have so many friends who have adopted very hurt children, the self abuse these children visit upon themselves is severe and heartbreaking. Scratching  or biting their skin off, pulling their hair out, banging their heads against anything they can, punching themselves in the head or face. rocking, moaning, keening, grinding their teeth.  My two have been home for 5 years ( give or take a few months) and they both have maintained some institutional behaviors.

Kara rocks, she punches herself in the head, she slams her head into the chair if she dislikes what we are serving. She does this off on on all day long, thank goodness she punches herself less, but the bashing her head into things is worse. At night I can hear her bed springs as she rocks.  Kara was from a decent orphanage, they had good heating, OK food, but lazy caregivers who preferred TV viewing to caring for the children. She obviously spent much of her time alone, hence the behaviors she learned to self sooth, she is also non-verbal. I know some of her behaviors stem from being unable to communicate aside from basic signs (food, drink, mom, dad, thanks, please).

Despite that, Kara is a easygoing  little girl, she giggles freely and adores Meghan, those two are best buds and sisters. She happily watches Barney and Disney movies and dances and plays, makes huge messes when she dumps all the clothes out of drawers and out of closets, you know, a regular kid.

Scratches courtesy of Amanda

Amanda has autism  and Down syndrome. Her life is just harder, she struggles mightily to follow the rules we have here. We do not allow our children to hit each other. Amanda though, she loves to scratch. She usually goes after Kara and Mathias, but any person sitting in her vicinity can fall victim to her attention.

Amanda does not mean to hurt anyone, honestly, it seems obvious she is trying to play with them, she just has no idea how, she was never socialized as a baby and toddler, she was isolated and neglected. She is now much like a 15-18 month old in her emotional development, and as such, is acting much like a child that age. When we brought her home at age 3, she was diagnosed with severe delay and failure to thrive, her median development was 4 months.  She has come a long way. It is hard for people to understand that even though she will be 8, she is very behind in every way a child can be. However, she is trying, and she is learning, and we are proud of her efforts and  of her learning some self control.

The effect she has had on our family dynamic cannot be trivialized. My older children have not bonded well with her, they avoid interacting with her because they do not trust her to behave herself . All have had their hair pulled or have been scratched by her.  I know it sounds like that is not a big deal, but she draws blood. She and our youngest son have bonded, he has spent the most time with her.

The sad fact is, Amanda craves attention, loves to be hugged and loves to spend time with people. She is an adorable little monkey and can be the sweetest child.  Her impulsiveness gets her into a lot of trouble.  She is also very jealous of any attention her sisters get, or her nephews, she wants all the attention all the time.

As long as it is myself, my husband and the little girls here, life is pretty calm, but change that dynamic  by bringing in our grandson or other children, and Amanda goes off-kilter. Kara will also get very giddy and jump all over everyone. They love company,  but they get wild. This makes for a chaotic time and we find that our older kids cannot wait to leave here. They think we live with that chaos all the time, not knowing it is their presence that brings it on.  If they were here more, it would stop happening, but they work, they have their own families, and their own lives, so that is not possible.

Some days I cannot wait for the girls to go to bed, when there has been lots of head banging and scratching and crying I am just exhausted. I sit here and shed some tears myself.  Many friends and family just do not want to talk about this aspect of our lives. Old friends and extended family feel we asked for this; we had the audacity to adopt children, thinking we were such great parents we could take this on, so if we are that perfect, we can do it on our own.  A few have said this to our faces, others have said it to each other. Some say we are special or saintly for adopting.  We are simply extremely ordinary human beings who saw someone else in pain and wanted to help. We followed the law of the universe; to care for "the least of these". We are no different than any other parent, sometimes we have the answers, and sometimes we do not.  We did not cease to need support and love just because we added to our family via adoption, but that is exactly what happened.

Why share this? It is simple, I understand what can happen to a family when they adopt internationally, people admire you and are suspicious of you at the same time.  We learned our neighbor believed we only adopted to get tax payer money from the state. (In AZ international adoptions do not qualify for state subsidy ) Can you imagine a person adopting just for $$, I guess some people do, but we are not those people, we paid considerable sums to bring our girls home.  Others want that happily ever after where our love opens our child's heart and changes them into  loving, kind, caring and "normal" children (with Down syndrome). You have better not tell the truth about how hard it can be and you had better not admit you feel overwhelmed sometimes. You better never say; "Why did I do this?" because someone who is adopting might be scared and abandon their plans, and then how will all those people get paid all that money for that child's adoption?  I admit I hate how much money passes hands during adoption, it is indecent.

Even though  raising our daughters (all our kids really) can cause stress sometimes, they do not put us through what children with severe RAD put their parents through. I read that the Russian child (Max) was covered in bruises  and I read comments from people accusing  the parents of doing this to him, saying there is no way a child could do this themselves. Truly those people do not know what they are talking about. Self-abusive children can inflict tremendous damage to themselves.  I do not know if those parents hurt Max, his death is a terrible loss, a tragedy and I am saddened to hear about it. However I am angry that people refuse to educate themselves about internally adopted children.  No matter how many classes you take or books you read, nothing prepares you for parenting a hurt child. You learn as you go along  the best way to help them. Just as you learned when you brought that tiny baby home and had no idea how to parent them.

Sometimes parents get lost, and sometimes the unthinkable happens and children die; like the 20 Russian children lost due to accidents, neglect or outright abuse. There is no excuse for it, and no child deserved to die at the hands of the very people who swore to love and care for them, but who is making sure those parents have support? Who makes sure the children are safe in those homes?

Our social worker has never visited us since she completed our home study. We have no post placement requirements from either country. Kara has a report due to Ukraine this year, Amanda's country did not ask for any since the first 6 months she was home. Every person involved in the adoption of our beloved daughters has fallen away into the past. No one from either agency has asked how the girls are doing for over 3 years.  Think about that, not a word, no call, no email, nothing from Reece's Rainbow where we found Amanda either.  I do not think it is lack of care, I don't, we just fell out of touch. Sometimes it bothers me, I feel like there should be someone somewhere who cares about what happened to the girls, do they wonder how they are?  

If it were not for Facebook groups where I can talk with other parents about  our adopted children, I would feel pretty alone. I am grateful for the people who thought to form the groups, it does not replace loving family and friends who we can spend time with, no, but at least there are others who know what we are going through in our day to day lives.

All of us; hundreds of families,  love and care for our adopted children like they are born to us. We cry because our children are in pain, we pray for their relief from their inner turmoil,  they are  members of our family. I do not know what image those Russian citizens have in their minds about what happens to the children here, but the majority of the children adopted  by families I personally know are lovingly cared for.




Monday, March 5, 2012

The dog ate my ...dishwasher

The thrill of getting new appliances, nothing beats it, right, strolling through a showroom full of gleaming stoves, refrigerators, dishwashers.


It does not take long for a salesman to find you, a millisecond? They work on commission, so they are highly motivated to be helpful. You tell them you need three appliances to replace yours, which you had 12 years, and well, they used to work better and look better. He tries not to look too eager, a practiced professionalism as he shows you THE MOST EXPENSIVE appliances in the entire room. Go for broke, why not.


We go from one to another, hearing why the elite is so much better than the others, better features. Things you really do not need, but they sure are nifty. Then the first time emotion to shows on his face is when you say, "We actually do not need all these features" and he sees his commission decrease...resignedly he shows you the appliances that are a step down from the elite, and you finally make your way to the dishwashers, you know you want stainless steel interior, and that is about it.


You find the color you want, the style (buttons on top to prevent curious fingers from turning it off before it is done) and you go to pay. Happily he tells you "These prices are only good today, tomorrow they all go back to normal" The tail end of The Presidents Day sale. So you take care of the money and arrange delivery, The refrigerator cannot be delivered until the middle of the month, back-ordered. The stove and dishwasher will come the following Monday.


The salesman gives you his card with his cell phone number on it, he tells you to call him if you have any problems.


Husband buys a kit for the refrigerator because you finally are getting an ice dispenser, something that will make a certain 11 year old happier than she should be over something so mundane, and husband installs it. You pull out and clean under everything in preparation for the shiny new appliances. You get a call from the delivery man, they can be there between 3-5. They get here at 4:45.


They haul your old stove away while you sing Hallelujah, dumb stove either did not work or burned everything. Your husband told Sears he wants to install the dishwasher because they charge too much. So they leave it outside, in your back yard.


Your 6 month old Chocolate Lab has been her crate the entire time the deliverymen are here, when they leave, you let her out. She needs to go outside, so you let her out the back door.


She is very interested in the huge cardboard box sitting on your back porch. She wonders what it may taste like? She takes a bite, and you tell her NO, she saunters away, acting disinterested.


You take a load of laundry out to the washer and she has gone back to her huge present and ripped a piece of cardboard off. You tell her no, and she goes to lie down. You spray dog repellent on the box.


An hour later you walk back outside and see white insulation and cardboard all over the patio. You catch very bad dog yanking on the drainage hose. She sees you and crawls to your feet, you tell her "Lola, to your crate now" and she runs in and lies down, staring up at you with her golden-brown eyes, looking very sad.


You look at the drainage hose, there are holes in it, can it be patched?


Husband comes home, you show him what dog has done, he tries hard to control his anger, not certain if he is mad at the dog or his wife?


You call Sears 800# and ask about replacement hose, tell them about the dog, they laugh and say "Oh yes, we had a Lab once" they transfer you to warranty dept, you tell them about the dog, more laughter, the hose is not covered by the warranty, it does not cover dogs. They transfer you to Sears Dept Store who say they have replacement hoses for about $20. You warn them husband is not happy and to expect a graying man with a scowl on his face.


Husband rushes to Sears before they close, wanting dishwasher installed ASAP, and is welcomed by appliance manager who addresses him by name. Husband does not know you told manager to expect him. He is surprised he knows his name.


Email receipt says husband has bought hose and the garbage disposal kit which the deliverymen forgot. They do not charge him for the kit, since it was paid for already.


Husband comes home and tries to put hose on, it kinks, it will not work. Husband gives up. Goes to bed.


The next few days husband attempts to patch hose, all attempts fail.


You go on website to order replacement hose, with shipping it will be $50. You call the salesman who gave you his cell phone number and tell him what happened with dishwasher, and he laughs, you are getting weary of folks thinking this is funny.


You ask him if Sears can order part so you can avoid shipping, he is not sure they can, and hangs up to ask the department manager. 30 minutes later he calls to say yes, they can order it, and no, there is no charge. He laughs and tells you:


"We love dogs, and we have all had something like that happen".


The part will not come until your new refrigerator is delivered.


At least the part is free.


The guilty party.

Forgive and forget?

My heart is pretty heavy today, happenings of the last week have wounded me; re-opening old wounds. Through this journey into the past, I re...